Can Patient Data Have a Second Life?

Explore the potential of patient data donation in medical research through this thought-provoking TED talk. Discover how medical oncologist and palliative medicine physician Amy P. Abernethy proposes to revolutionize healthcare by collecting donated health information directly from patients' bedsides. Learn about the concept of a "health data trust" and how it could transform the way we approach medical studies, moving beyond traditional cohort-based research. Understand the parallels between blood donation and health data donation, and examine the technological and ethical considerations involved in this innovative approach. Gain insights into how patient data donation could lead to more personalized treatments, improved healthcare outcomes, and accelerated medical discoveries.

Intro
Meet Janet
Family history
Tool box for treatments
Big data
Clinical pearls
Patience
Patient data
Reframing the concept
Blood donation
Blood bank
Technology
Donation options
Access to data
Feedback
Results
Health
Trust