Building an Ethical Data Infrastructure

Explore the critical issues surrounding ethical data infrastructure in this 29-minute conference talk from linux.conf.au 2020. Delve into the challenges of balancing big data research benefits with ethical implications on human subjects in the digital age. Learn about the Digital Observatory case study, illustrating key considerations in building trusted data platforms for academic research. Examine the importance of ethical frameworks, stakeholder engagement, and principled approaches to data collection and usage. Gain insights into the complexities of digitization, data privacy, and responsible research practices across computational, natural, and social sciences.

Introduction
Acknowledgement
Problems
Henrietta Lacks
HeLa Cell
Henriettas case
Digital breadcrumbs
Code of ethics
Mission
Key stakeholders
Principles
Trust
Process
Summary
Data bank
Adhoc collections
Research projects
Thank you