Visual ODLs - Co-Designing Patient-Generated Observations of Daily Living to Support Data-Driven Conversations in Pediatric Care

Explore a 21-minute conference talk from the ACM CHI Conference on Human Factors in Computing Systems that delves into co-designing visual tools for symptom communication in pediatric care. Learn how researchers created a visual library of 72 sketched illustrations based on the Observations of Daily Living framework and insights from clinician interviews. Discover the findings from co-design sessions with chronically-ill teens and their parents, including how teens depicted symptoms as intertwined with personal and social identity narratives. Gain insights into the potential of collaboratively-generated, interactive storyboards as tracking and communication mechanisms for symptom management. Understand three ways these tools could enhance communication and coordination with informal and formal caregivers in pediatric care settings.

Visual ODLs: Co-Designing Patient-Generated Observations of Daily Living to Support Data-Driven ...