Shared Journeys: Evidence-Based Anticipatory Guidance for Children with Severe Neurologic Impairment

Explore a Complex Care Journal Club podcast episode featuring Dr. Julie Hauer and Ms. Jennifer Siedman discussing the development of NeuroJourney, an anticipatory guidance tool for children with severe neurologic impairment. Learn about its foundation in palliative care principles, its potential to foster collaborative relationships between clinicians and families, and future directions for this initiative. Gain insights from experts in pediatric care as they delve into the creation of journey maps for children with complex medical needs, the importance of advance care planning, and the collaborative efforts between private and academic pediatric palliative care, nonprofit organizations, and parents. Discover how this evidence-based tool can enhance support for families navigating the challenges of caring for children with severe neurological conditions.

Shared Journeys: Evidence-Based Anticipatory Guidance for Children with Severe Neurologic Impairment