Explaining Systemic Sclerosis (SSc) to Family and Friends

Participate in an interactive webinar featuring two European patient representatives and two European experts discussing systemic sclerosis (SSc). Learn how to explain this rare autoimmune disease to family, friends, and caregivers in layman's terms. Gain insights from patient advocates Sue Farrington and Ilaria Galetti, who share their personal experiences with SSc. Benefit from the expertise of Prof. Marco Matucci Cerinic and Prof. Vanessa Smith, who provide additional perspectives based on their extensive clinical and research experience. Explore topics such as disease symptoms, impact on daily life, treatment options, and strategies for communicating about SSc with others. Discover valuable resources for further information and support, including the ERN ReCONNET network and patient organizations like FESCA and SRUK.

Explaining Systemic Sclerosis (SSc) to family and friends