A Patient-Driven Approach to Cystic Fibrosis Research - Webinar - Ambry Genetics

Explore a groundbreaking webinar on patient-driven cystic fibrosis research presented by Ambry Genetics. Discover how CysticLife pioneered a revolutionary approach to healthcare by empowering the CF community to design, plan, and fund their own innovative study on exercise as a treatment. Learn about patient-centered care, the concept of actively involving patients and families in healthcare decisions, and how it has evolved into patient-driven research. Gain insights into the study design, medical implications, and research goals of this community-led initiative. Witness a real-time demonstration of CysticLife's crowdfunding approach and understand how this model can inspire other patient communities to pursue meaningful research. Presented by experts Courtney Wheatley, PhD, Julie Desch, MD, and Ronnie Sharpe, this hour-long webinar covers topics such as the Research Advisory Board, research questions, snap polls, and personal experiences with CF. Delve into current therapies for CF, challenges, opportunities, and the potential impact of this patient-driven approach on the future of healthcare research.

Introduction
PatientDriven Research
CysticLifeorg
Questions
RealLife Questions
The Research Advisory Board
Research Questions
Snap Polls
Research Advisory Boards
Contact Information
My Purpose
My GF Life
My GF Family
My Exercise Habit
My Best Guess
My CF Routine
My Life Routine
My Exercise History
Why Im Excited About This Question
Current Therapy for CF
Summary
Challenges Opportunities
Design